We fought for this," Ms Shekaran said.Today, she receives carer support multiple times a week, which includes meal preparation, personal care, cleaning and some transport.So when Health and NDIS Minister Mark Butler announced sweeping changes to the $50 billion scheme last month, her reaction was visceral."I was angry because I'm a disability advocate for other people as well…People are absolutely scared," she said."It is a state of limbo It is very, very painful for me."I don't know where the axe will fall."Ms Shekaran is just one of thousands of NDIS participants waiting to learn if their services will be impacted as part of sweeping government reforms to the scheme.A core feature of the federal government's changes to the scheme is slashing participation from 760,000 to 600,000 by the end of the decade.The new approach will tighten eligibility by moving away from diagnosis-based assessments and take into account a person's functional capacity.It will also cap the cost for social and community participation funding, which is expected to reduce an average participant's yearly cap from $31,000 to $26,000.The program is the fastest growing part of the scheme and has increased from $4 billion to $12 billion in five years