We've received a lot of support that has helped us, but it hasn't always been a pleasant journey trying to get that support."Because of her big sister's diagnosis, Willow has had the benefit of testing positive for spinal muscular atrophy while still in the womb.Doctors induced her birth at 38 weeks.She started treatment on her first day of life.Willow received the latest spinal muscular atrophy drug — Evrysdi, a once-a-day oral medication and the only non-invasive treatment for the condition.Evrysdi works by increasing the production of SMN protein in the body, using a different mechanism to Spinraza.Willow took the drug for about a month until the Queensland Children's Hospital could import the gene therapy drug Zolgensma from the US She's crawling and she's pulling herself up to stand and she's cruising along the furniture."We have to keep a good eye on her."Queensland Children's Hospital neurologist Anita Cairns describes the medications Reena and Willow have received as a "game changer" for the treatment of spinal muscular atrophy.The year before Spinraza first became available in Queensland as part of a clinical trial, Dr Cairns recalls seven babies being diagnosed with spinal muscular atrophy