But she's not worried about it because she knows how to help him manage the condition."There are people I know who, it barely affects them … And then there are people like me who are relying on mobility aids daily," Jacqueline said."I think, if at least, if he has this genetic disability, I am going to be able to support him because I've been through it myself."Like most people with EDS, Jacqueline was diagnosed in adulthood after years of living with chronic pain and injury.She says she will be aware if her son shows signs of the condition and will be able to advocate for him where her own parents couldn't.Comedian Madeleine Stewart explores these stories of disability love, sex and parenting with Compass ABC TV Cool'," Kyle said."I didn't really feel like I had the confidence to go dating and have a sex life because I don't obviously know about my body.He spent a year in hospital, coming off a ventilator and getting the use of his arms back, but Kyle said discussions of having a sex life afterwards were very clinical."I ended up speaking to a lot of doctors about it, but they just told me about drugs and devices that I could use."It wasn't just about sex, which it should have been, and sexual health … It was so clinical."Kyle is now in a monogamous relationship, and they are considering going permanent and starting a family.Kyle is concerned about trying for children because his disability means they will likely need to use IVF, which is not only expensive but also another clinical experience.Madeleine felt it was important to tell these stories of parenting after the NDIS change of legislation prevented access to sex workers and sexual aids."People with disability should be given room and support to explore their sexuality